Transcript
OLHtVfp6PJM • How "Long COVID" is Affecting Patients
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Kind: captions Language: en it's the worst thing in the world to be thinking about where you need to place your children in the event that something happens to you we raced to the er in galveston texas because i had difficulty breathing hurt to talk i was a active healthy person my quality of life is still severely uh impacted from this more than nine months after being treated for covid19 epidemiologist dr margot gage whitfeli is still experiencing lingering effects of the virus at one point i had to use a cane to get around if i walk to the kitchen i would forget what i was going there for i had forgotten my daughter's birth dates at one point she considers herself a coven long hauler a term used to describe persisting symptoms or new complications that occur weeks or even months after a coven 19 infection has passed long haulers commonly describe trouble breathing cognitive and neurological issues we expected that with every viral infection you get some lingering kind of symptoms that patients would have but the extent of and the different varieties of syndromes that we've seen that is unprecedented for many other viral infections the number of people experiencing lingering symptoms from the coronavirus is unknown but researchers estimate that millions of americans could be affected and even if only one percent or even less than one percent of patients are affected by covid long that's a lot of patience and it's not only those who had trouble breathing during their initial infection who are suffering lasting effects of the virus that came to us as a real surprise so some patients can have very little lung symptoms and then come down with all these neurological symptoms after that symptoms like the persistent loss of smell and taste vision changes numbness tingling and muscle pain so i woke up with like extreme left-sided weakness like i could barely balance on my own i couldn't hold my dog's leash in my hand my vision was spotty felt like you're looking through swiss teas where you're like you can only see a little bit of the picture riley barons was hospitalized after testing positive for covid doctors told him he had likely suffered a transient ischemic attack or a mini stroke when he said stroke like a mini stroke i laughed and i was like dad i'm 23 like this isn't real the doctor's wrong covet is doing things to people that nobody would have ever imagined researchers aren't sure to what extent the virus can enter the brain or directly attack the nervous system causing these neurological symptoms but it's possible the immune system doesn't return to normal after the infection is cleared triggering an autoimmune response i think the immune dysfunction is certainly a major part of this syndrome now viruses are very clever and they don't have all the machinery to survive by themselves so they have to survive in the host so in order to do so they co-opt the host's machinery it's not unusual that some parts of the virus may resemble that of the host if the immune system starts mistaking self for something foreign then you end up with this autoimmune reaction in other words our immune system gets confused and instead of just attacking the virus and other foreign invaders it might actually start attacking healthy cells some symptoms of long covet overlap with a chronic illness called mecfs which has been linked to sars symptoms like memory loss confusion fatigue or post exertional malaise i i run out of energy almost as if i'm an electrical device and with no backup battery and somebody just pulled the cord out and that's it i beat oh i've got nothing more in me there are still a lot of unknowns about the permanent and long-term effects of covin but other coronaviruses like sars and mers have left survivors with persisting lung damage it's too early to know what the long-term consequences might be and if there's permanent damage to the brain or other neural structures we do worry that there will be long-term consequences and these patients not all of them will recover completely nearly a year into the coronavirus pandemic a path forward for those affected is still unclear a lot of us are going to be having issues for a really long time and i think that there's a lot more of us than we realized are there patients actually suffering who think this is normal i actually wonder a lot is that going on especially in our more vulnerable communities